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Optic Neuritis / Multiple Sclerosis

Discussion in 'BBS Hangout' started by rocketshopeful, Sep 27, 2010.

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  1. rocketshopeful

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    Someone close (i'll leave it at that ) lost vision in her eye last week. She initially thought it was allergies but I knew that did not sound right. She finally got it looked at today, and the Optomologist's initial diagnosis is "Optic Neuritis". She is waiting for an MRI to be scheduled tom.

    http://en.wikipedia.org/wiki/Optic_neuritis

    Its link to multiple sclerosis is whats worrying me. The things I am reading online just don't sound good any way I look at. Anyone on the board have a similar experience directly or indirect? Trying to focus on the positives but good to know what to be prepared for in the worst case as well.

    Thanks in advanced for the words of wisdom.
     
  2. bejezuz

    bejezuz Member

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    Has she had any other neurological events? Usually it takes two to be diagnosed with MS. The most common one is numbness in the hands or feet.

    A friend of mine was diagnosed with MS within the last few years, and one of her symptoms was a temporary loss of vision. My mother was diagnosed with MS when she was 19, and just passed away last year right before her 58th birthday due to complications arising from her MS. She never had that symptom, but the MS did affect her vision in other ways. Luckily, the medicines available are much better now than when my mom was diagnosed.

    Email me through the board if you need any recommendations for specialists. My friend found the best MS specialist in Houston and I'd be glad to pass on his contact info. My parents met with him too and really liked him.
     
  3. Landlord Landry

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    hey dude, I posted a thread last year, it was on july 3rd. I dont remember the title, but my sister was diagnosed with a terminal case of MS. This was after several other speculations including cerebral palsy, HIV and cat scratch fever. But ultimitaly she had lesions all over spine and brain. she was given 2 years to live.

    she has made progress though, she still has partial paralysis and gets a little loopy at times from her meds, but she is getting better. she was approved for a case study for a prescription treatment... amprya. she refers to it as 'the walking pill'. she just started on it so we'll see what happens.

    I should point out that my sister has an extremely aggresive case of MS. I dont think most MS patients have as many problems as my sister. I hope everything works out for your friend. MS is a pain in the dick. Good luck.
     
  4. Ubiquitin

    Ubiquitin Member
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    MS is usually described as multiple neurological episodes like motor weakness and sensory changes over a given year. Optic neuritis by itself could be a sign of any number of illness, even diabetes. I am hoping that the diagnosis is wrong and your friend does not need immunosuppressive therapy.
     
  5. rocketshopeful

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    thank you for the offer. may have to take take you up on it .
     
  6. rocketshopeful

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    Your sister sounds resilient. Best Wishes to her.
     
  7. Raven

    Raven Member

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    Most people with MS go on to live mostly normal lives. The most common symptom is lose of energy, but I know someone still walking around who was diagnosed back in the 80s. It's not a death sentence, but it's definitely going to alter your friend's lifestyle, especially if they enjoy playing sports or being physically active.
     

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