That's unbelievable - in a good way! Glad things are going well. Can't even imagine what your family has been through in the past year. This little girl will have quite the story to tell when she gets older!
Glad to hear the positive news! The best medicine she's getting is your love - she needs it more than anything else (and always will)
Great news, I wish you and your family all the best. When I was 13 i was diagnosed with a rare disease, it was probably the hardest moment of my life and possibly one of the hardest moments in my parents life. Things do get better, I lived with the disease for half my life and today pepole that meet me for the first got no idea that i'm sick. Everyone is different and every disease is different but one thing I can say is that things do get better. I started with 13 pills a day that turned to 4 pills a day, i found my passion and my job partly thanks too the struggles and what I've been to, I even live in a different country from my parents which seemed like a dream to 13 years old me. I'm trying to cheer you up and also cheer myself up as i'm waiting for my MRI appointment whlie trying not to go crazy.
@Haymitch I look forward to you getting out of the weeds with this. More positive vibes sent your way!